Tuesday, May 5, 2009

Anxiety and Frustration is Returning Full Force

Ok, so as you know my donor cycle got canceled last month because my donor's estradoil levels were too high to start stims despite the fact that she's never had any issues in the past and has always performed "beautifully." Why, why, why did this have to happen when we decide to use her for our donor??? Anyway, last month when I got that bit of great news, the nurse said that we would just wait a month and then everything should hopefully be fine.

Well, it is now next month. Based on the calendar they gave me last month and the timing of my lupron injections, it looks to me like I should be starting back NOW - possibly even a few days ago. That is if we are following the same schedule as last month. I never heard anything from the clinic, so I called last Friday to ask what was going on and to find out if I needed to start the lupron etc.

Wow -how things never change. I never got a call back from the nurse on Friday. On her voice mail she said that she returns all calls within 24 to 48 hours, so I waited until the end of the day on Monday and no call back - even though I stressed to the nurse that I need to know what the plan is - one, because I don't want to be put off for another month and I think it's time to get this show on the road and two, because me and hubby are going out of town for our anniversary on Thursday and won't be back until Sunday. So, if I need to come in for an u/s or if I need to start my injections I need to know this ASAP!!! Nothing.

So, I picked up the phone around 4:30 and called another nurse in the clinic and explained the situation to her. She actually called me back, which was nice BUT when I asked her what was going on and shouldn't we be getting started she was like - oh, I'll put a call into your donor and see where she is in her cycle - WTF!! Shouldn't they know where she is in her cycle - don't they have this information in their files - I know I have it on my calendar. I wrote down the day her period started and when they found out her E2 levels were too high - didn't they? Why do they have to call her and ask???? Plus, if I hadn't called them - would they have never called me to start. It sounds like no one is paying attention to what is going on.

I am really starting to freak out again. Big time!! I am so tired of all the roadblocks. We've been at this for way too long! Not to mention the year of trying on our own and then the three IVF attempts but we submitted our donor application back in Jan. It is now May and we still haven't done anything and no one seems to care. I am this close to losing it. All I know is that someone better call me with some answers today or else I may just have to go to the clinic on Wed and try to find out what the heck is going on. I want to enjoy my anniversary trip. We leave Thursday - I need answers. If they mess around and we end up not being able to proceed this month because they didn't have their act together, I just don't know what I'll do......

Losing it - I swear!

2 comments:

Sky said...

Riley, I've been where you are (and beyond). It sucks to be so overdue (pardon the pun) for success in this process and get to the point of acceptance of using donor eggs and then find that the clinic is the only thing holding you back. Not anything else! Ugh!

If it makes you feel any better, I'm a patient with CCRM, you know - the guys with the great success rates and price tag to prove it. Well, in the very beginning, I thought that meant perfection in every way. I've learned things fall through the cracks ALL THE TIME there too. Just yesterday I emailed my nurse to tell her I was checking in and wondering when I'd get my calendar and she asked me to call her with my CD1 after I stopped my BCP's this week. Huh? I mean, she'd glossed over something in an email a couple of weeks back about using only 16 pills in my next pack but then said she'd email me the calendar for next cycle and that pivotal bit of info was buried (trust me, I'm a Type A personality and if she was clear, I would have the date etched in my brain of when to stop the BCP's - but I've had to relax some 'cause it'll make me and them crazy too!).

Anyhoo, thank goodness I reached out and learned that I'm supposed to stop BCP's this Thursday, bring on a cycle and then I don't know what because she's waiting for CD1 to do the calendar.

It's frustrating and very scary. It's a LOT of money, physical and emotional investment and I've been on the DE waiting list since October (and hadn't cycled for months prior to that). I'm SO eager to get moving along already.

So, loooong story to say, boy do I understand and my heart goes out to you.

Stay on top of them. Get a notebook and write it all down so you can remind them if need be. (of course, when you have to pay them for the cycle, you'll notice how finance doesn't drop that ball!) ;)

Anonymous said...

Sooo frustrating! I really understand where you are coming from, and I agree with Sky that you should call them every day (at least) until you get some answers. This is completely unacceptable when you have a donor and supposedly you are cycling! (not to add fuel to your fire or anything)

Hope they get it together and the donor's levels are in the good zone. When you think of all the things that have to match up it is amazing this ever works! But it does, and I'm betting this is your month - hang in there!